DEE-P Connections

DEE-P Connections

Many DEE families have children who are incredibly medically complex and frequently confronting a range of medical issues that are hard to diagnose and treat. They are constantly searching for answers to help better explain and ameliorate the many challenges their children are facing. DEE-P provides a one-stop hub for families to access high quality resources on a wide mix of medical, care and research topics to help improve care and outcomes for those living with DEEs. Clinicians can efficiently get informed about leading practices and provide their families a reliable resource targeted to their specific needs. Researchers are invited to participate in sessions and inform us of possible areas of interest/research. Patient groups are invited to join and work with us to build these resources for their communities. We welcome Industry partners to support this innovative and targeted approach for serving the unique needs of DEE families.

Education, Patient Advocacy Group, Research Ad